Category: ALS

  • #28: What Remains

    #28: What Remains

    Last week you sat at the table with tears in your eyes. You looked at the kids sitting at the island and said, your voice trembling with sadness, “I’m sorry guys. A dad is supposed to be big and strong.” Our 8-year-old climbed down from her stool and walked over to you. She put her…

  • #5

    Chris is doing really well, the last few months especially. He feels positive and grateful. He smiles and laughs easily. As the entire country could see during Hockey Night in Canada After Hours, he is inspiring.  And when he feels positive I do, too. Mostly. Early on I was drowning in grief and sadness and…

  • #4

    #4

    I remember being in the car, coming here for the first time in June last year. We were waiting to turn left into the hospital entrance and I saw the billboard: “Where Impossible Becomes I’m Possible.” I pointed it out to Chris. He squeezed my hand. All our hope was here, and we were both…

  • #2

    This Christmas I cried three times, and that felt like a pretty big win. The first time was when I opened a card from Chris. I cried because he wrote in it. I knew how much effort it took. He wrote in it left-handed, because he can no longer grip a pen with his right…

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