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ALS, Grief

#5: A Rogue Wave 

Chris is doing really well, the last few months especially. He feels positive and grateful. He smiles and laughs easily. As the entire country could see during Hockey Night in Canada After Hours, he is inspiring.  And when he feels positive I do, too. Mostly. Early on I was drowning in grief and sadness and fear. Now it comes in waves. Sometimes I can see it coming. Sometimes it hits me and suddenly I’m sobbing…

ALS, Family

#2: At Christmas, Staying Present 

This Christmas I cried three times, and that felt like a pretty big win. The first time was when I opened a card from Chris. I cried because he wrote in it. I knew how much effort it took. He wrote in it left-handed, because he can no longer grip a pen with his right hand. He can’t do anything right-handed, which was his dominant hand until earlier this year when suddenly it got harder…

Family, Hope

#1: Our Story 

By Kelsie Snow I used to tell stories for a living, but telling your own story is different. It’s scary and it’s hard and it exposes you.  And that’s why it’s important.  People aren’t good at grief, and that’s because we don’t share it. We hide it away and expect those living through it to do the same.  My family is grieving. And we are also joyful. We are scared and we are hopeful. We…