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ALS, Gratitude

#19: Still Here 

The past few days, friends on social media started posting the first photo they took in 2020 and the last. Some were heartwarming — the friend whose first photo was of her pregnant belly, the last of her adorable baby boy. Others were silly, a play on the stresses of a hard year, and some heartbreaking — photos of people who started the year with someone they love and are ending it without them. I…

ALS, Gratitude

#10: Life in the Bonus 

I didn’t know Colby Cave. I don’t know his wife or his parents or any of the people who love him. But when I sat down at my kitchen table this morning, opened Twitter and saw that he passed away after suffering a brain bleed earlier this week tears filled my eyes. At the other end of the table, Chris was doing a puzzle with our daughter. I told him. “No,” he said as he…

ALS, Gratitude, Hope

#4: Living the Dream 

I remember being in the car, coming here for the first time in June last year. We were waiting to turn left into the hospital entrance and I saw the billboard: “Where Impossible Becomes I’m Possible.” I pointed it out to Chris. He squeezed my hand. All our hope was here, and we were both scared and hopeful as hell. That was almost seven months ago. The photo on the left was that day. The…

Family, Gratitude, Grief

#3: 525,600 Minutes 

My social media feeds are full of people wishing farewell to 2019. So many of the people I know found the last year hard, and I’m no different — 2019 was certainly the hardest year of my life so far. I definitely used to be one to say good riddance to a year that seemed filled with more heartache than joy. But I’m not here for that anymore. Because no matter how hard the last…

Gratitude, Illness

To love my body, it had to fail me. 

This week I was skating with my family, racing my 4-year-old up and down the rink as she giggled and squealed. I watched her wobble and right herself and push forward to win. I followed behind her, skating the length of the ice on one foot going one direction, the other coming back. I’m not a great skater, but I did it with ease, and in that moment I was struck by such a deep…