About Us

In April 2019, Chris, an assistant general manager of the NHL’s Calgary Flames, was lifting weights when he noticed two of the fingers on his right hand felt numb. Not even a year earlier, Chris’ dad had passed away from ALS. He has also lost two uncles and one cousin to the disease.

Two months after that day in the gym, Chris was diagnosed with ALS and given 6-18 months to live.

This blog chronicles our story, and here are links to others who have helped to tell it.

To read the letter Kelsie wrote when we told the world about Chris’ diagnosis, click here: https://www.nhl.com/flames/news/dear-hockey-family/c-312763286

To watch our segment on Hockey Night in Canada, click here: https://www.sportsnet.ca/hockey/nhl/chris-kelsie-snow-still-full-hope-spite-als-diagnosis/

To watch us on Hockey Night in Canada’s After Hours in January, 2020, click here: https://www.sportsnet.ca/hockey/nhl/hours-chris-kelsie-snow/

To watch us on Hockey Night in Canada’s After Hours in May, 2020, click here: https://www.youtube.com/watch?v=Cw13qsOL6LA

To listen to Chris on Craig Custance’s The Full 60 podcast, click here: https://theathletic.com/podcast/22-the-full-60/?episode=98

To read our friend Amalie Benjamin’s story about us, go to: https://www.nhl.com/news/gene-therapy-hope-for-flames-chris-snow-als/c-316171086

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